Author Archives: kcav95

Happy Summer Solstice – the longest day of the year feels just about right for today! Today, after 3 weeks at Saint Joseph’s, we were able to take Kevin to Craig Hospital. He arrived just before 1pm and immediately was taken to his room to get set up. We met so many new faces andContinue reading “Craig Hospital! Monday, 6/21/21”

I recently listened to a This American Life episode where a man who lost several parental figures in a few months reckoned with grief, loss and the purpose of enduring both. He summed it up by saying, “The reason we’re all here, I think, is to get each other through it and to the otherContinue reading “Sunday, 6/20/21 Update”

I never anticipated pumping fists with a room full of doctors over a nose tube removal, but victory looks like unanticipated things these days. Today, Kevin got the go-ahead to have the tube that feeds him through his nose removed. He worked hard to go far beyond the required calories for the last days toContinue reading “Saturday, 6/19/21 Update”

I apologize for the delay with this update, between Kevin’s room change and Mom and Dad flying home things have been busy. Mom will be back on Sunday evening and Dad will be in Florida for a bit longer. I will be with Kevin everyday while they are away. Today’s greatest surprise? A visit fromContinue reading “Friday, 6/18/21 Update”

Today, Kevin was moved from the ICU to Intermediate Care. Although this makes us a bit nervous and it was hard to say goodbye to the ICU staff, we are hoping this means he is moving in a positive direction! He was absolutely exhausted today so he slept most of the day. However, he didContinue reading “Wednesday, 6/16/21”

Kevin was very busy today and we all felt hopeful inbetween the bustle. Occupational Therapy got him into a chair for an hour and helped him wash his hair (all the nurses tell him he has the best hair even after 15 days in the ICU). Physical Therapy introduced some more stretches and movements toContinue reading “Tuesday, June 15th 2021 update”

As far as I’m concerned, our Mom is nothing short of a hero of heart and might. It’s no secret to me that she is impossibly kind but whatever idea I had of her resilience was an underestimation at best. She has been in the freezing, fluorescent ICU for 14 days straight without a singleContinue reading “Monday, 6/14/21 Update”

I have been pinning each of our tumultuous days with the label “good” or “bad” but I don’t think those words have enough room for what we are experiencing. Each hour is a different moment, “good” or “bad”, and still we have hints of light or dark in each. As Kevin’s condition constantly varies, weContinue reading “Sunday, 6/13/21 Update”

I’ve never been able to hold a candle to level of sports fanaticism Kevin and our Dad have. However, when I heard my little brother’s voice yell, “GOOOAAAAL” followed by laughter at simply hearing his own voice again, I was ready to go buy a jersey for the winning team. Today Kevin worked with hisContinue reading “Friday, 6/11/21 Update”

Kevin started his day strong by taking 3 hours off breathing support. This by far is the longest he has breathed on his own and we are proud of the effort it must’ve taken. Not long after, Kevin’s speech therapist came in and took him off breathing support for another 30 minutes to work onContinue reading “Thursday, 6/10/21 Update”