Kevin’s Baclofen pump surgery was last Thursday and although it came with a challenge or two, it marks the beginning of what seem to be new possibilities.
We weren’t expecting to see many improvements with Kevin’s spasms until the adjustment period for the Baclofen pump set in (it takes a few weeks to reach the final dosage). However, he’s seen a significant improvement already since leaving surgery! Once he recovers from the surgery itself this reduction in the spasms will allow him to patriciate in the type of physical therapy he needs. Before the surgery, I wasn’t able to even give him a hug or hold his hand without seeing a spasm – so you can imagine what it means to see such a great reduction in them already.
As I said, the surgery did come with challenges. Kevin experienced a spinal fluid leak from a puncture during his surgery. When spinal fluids leak, they cause the supportive “cushion” they provide the brain to sag, creating intense pressure. This pressure leads to a near constant, severe headache. Because of this, he will be getting a blood patch tomorrow morning. This is when his own blood is taken and inserted via an epidural, allowing it to clot and cover the leak. We are hoping he will only need one blood patch procedure and that the leak will heal in the next few days.
We are hopeful that after the blood patch tomorrow Kevin will finally get his trach out! This will also require some monitoring and healing but Kevin has been looking forward to getting it out so we are excited for him.
Starting Thursday, Mom will be taking care of some arrangements for when Kevin moves to New Smyrna, so she will be away and I will be full-time with Kevin until Monday. We will update when we can but please know we may be running around quite a bit!
Much thanks and love,
Katie and the Cavanaughs
Kevin’s Donation Fund:
https://secure.qgiv.com/for/t4f
*Be sure to choose his name from the dropdown menu
🙏🙏🙏
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Our thoughts and prayers continue for Kevin and the whole family. 🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
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Good news, but bless him and his strength. So many challenges along the way, but still great strides and improvements. Thank you as always Katie for your wonderful and informative updates.
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Lord we pray that you provide healing for the leak and you clear the pain. Thank you for the surgery and praying for many days of hugs and handholding that are comforting and peaceful. Please continue to lead Kelli Katie and Casey in every detail for the care of Kevin. Give the doctors wisdom they know that you are deeply intimately involved.
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You all are learning so much more medical information which can be helpful and overwhelming at the same time. Your dedication and care of Kevin along with your continued updates are nothing short of heroic. We hope you will feel the love and support of so many who are lifting you up in prayer and providing additional needs to Kevin and your family.
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